The perception of family caregivers regarding the changes that occur after the diagnosis of dementia

Abstract Objectives : to identify the perceptions of family caregivers regarding the changes that occurred in the family after an elderly relative received a diagnosis of dementia, measuring the changes in the level of burden and analyzing the discourse of such caregivers. Method : the research was conducted through an interview and sociodemographic questionnaire, in addition to the application of a scale that measures caregiver burden, the Zarit Burden Interview. These procedures were applied in two stages, in the multidisciplinary reception of a geriatric clinic, and after three months of care. For the qualitative analysis, the IRaMuTeQ software was used, where, in the first stage, the results were as follows: in the Descending Hierarchical Classification (DHC) four classes were identified: Time (25.00%), Knowledge (33.00%), Consequences and Causes (19.40%); In the Word Cloud (WC), the word ‘No” prevailed. In the second stage, DHC presented six classes, Current Time (13.70%), General Causes (15.70%), Future Time (13.70%), Actions (17.60%), Consequences (23.50%) and Immediate Causes (15.70%). The WC continued to refer most frequently to the word ‘No’. For quantitative analyzes, the SPSS software was used. Results : in most cases, the profile of caregivers was women (75.00%), wives (62.00%), primary caregivers (87.50%), and the elderly (60-75 years). The assessment of burden was moderate to severe (75.00%). Conclusion : caring for a relative with a diagnosis of dementia has direct implications for family caregivers, especially family caregivers facing the aging process. The demands of caring modify the family routine and greatly increase the burden of caregivers.

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Main Authors: Cesário,Luciana Maria Santos, Chariglione,Isabelle Patriciá Freitas Soares
Format: Digital revista
Language:English
Published: Universidade do Estado do Rio Janeiro 2018
Online Access:http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1809-98232018000600743
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spelling oai:scielo:S1809-982320180006007432019-02-28The perception of family caregivers regarding the changes that occur after the diagnosis of dementiaCesário,Luciana Maria SantosChariglione,Isabelle Patriciá Freitas Soares User Embracement Caregivers Dementia Family Abstract Objectives : to identify the perceptions of family caregivers regarding the changes that occurred in the family after an elderly relative received a diagnosis of dementia, measuring the changes in the level of burden and analyzing the discourse of such caregivers. Method : the research was conducted through an interview and sociodemographic questionnaire, in addition to the application of a scale that measures caregiver burden, the Zarit Burden Interview. These procedures were applied in two stages, in the multidisciplinary reception of a geriatric clinic, and after three months of care. For the qualitative analysis, the IRaMuTeQ software was used, where, in the first stage, the results were as follows: in the Descending Hierarchical Classification (DHC) four classes were identified: Time (25.00%), Knowledge (33.00%), Consequences and Causes (19.40%); In the Word Cloud (WC), the word ‘No” prevailed. In the second stage, DHC presented six classes, Current Time (13.70%), General Causes (15.70%), Future Time (13.70%), Actions (17.60%), Consequences (23.50%) and Immediate Causes (15.70%). The WC continued to refer most frequently to the word ‘No’. For quantitative analyzes, the SPSS software was used. Results : in most cases, the profile of caregivers was women (75.00%), wives (62.00%), primary caregivers (87.50%), and the elderly (60-75 years). The assessment of burden was moderate to severe (75.00%). Conclusion : caring for a relative with a diagnosis of dementia has direct implications for family caregivers, especially family caregivers facing the aging process. The demands of caring modify the family routine and greatly increase the burden of caregivers.info:eu-repo/semantics/openAccessUniversidade do Estado do Rio JaneiroRevista Brasileira de Geriatria e Gerontologia v.21 n.6 20182018-12-01info:eu-repo/semantics/articletext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S1809-98232018000600743en10.1590/1981-22562018021.180123
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libraryname SciELO
language English
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author Cesário,Luciana Maria Santos
Chariglione,Isabelle Patriciá Freitas Soares
spellingShingle Cesário,Luciana Maria Santos
Chariglione,Isabelle Patriciá Freitas Soares
The perception of family caregivers regarding the changes that occur after the diagnosis of dementia
author_facet Cesário,Luciana Maria Santos
Chariglione,Isabelle Patriciá Freitas Soares
author_sort Cesário,Luciana Maria Santos
title The perception of family caregivers regarding the changes that occur after the diagnosis of dementia
title_short The perception of family caregivers regarding the changes that occur after the diagnosis of dementia
title_full The perception of family caregivers regarding the changes that occur after the diagnosis of dementia
title_fullStr The perception of family caregivers regarding the changes that occur after the diagnosis of dementia
title_full_unstemmed The perception of family caregivers regarding the changes that occur after the diagnosis of dementia
title_sort perception of family caregivers regarding the changes that occur after the diagnosis of dementia
description Abstract Objectives : to identify the perceptions of family caregivers regarding the changes that occurred in the family after an elderly relative received a diagnosis of dementia, measuring the changes in the level of burden and analyzing the discourse of such caregivers. Method : the research was conducted through an interview and sociodemographic questionnaire, in addition to the application of a scale that measures caregiver burden, the Zarit Burden Interview. These procedures were applied in two stages, in the multidisciplinary reception of a geriatric clinic, and after three months of care. For the qualitative analysis, the IRaMuTeQ software was used, where, in the first stage, the results were as follows: in the Descending Hierarchical Classification (DHC) four classes were identified: Time (25.00%), Knowledge (33.00%), Consequences and Causes (19.40%); In the Word Cloud (WC), the word ‘No” prevailed. In the second stage, DHC presented six classes, Current Time (13.70%), General Causes (15.70%), Future Time (13.70%), Actions (17.60%), Consequences (23.50%) and Immediate Causes (15.70%). The WC continued to refer most frequently to the word ‘No’. For quantitative analyzes, the SPSS software was used. Results : in most cases, the profile of caregivers was women (75.00%), wives (62.00%), primary caregivers (87.50%), and the elderly (60-75 years). The assessment of burden was moderate to severe (75.00%). Conclusion : caring for a relative with a diagnosis of dementia has direct implications for family caregivers, especially family caregivers facing the aging process. The demands of caring modify the family routine and greatly increase the burden of caregivers.
publisher Universidade do Estado do Rio Janeiro
publishDate 2018
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1809-98232018000600743
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