Family network of children with special health needs: implications for Nursing

OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.

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Main Authors: Neves,Eliane Tatsch, Cabral,Ivone Evangelista, Silveira,Andressa da
Format: Digital revista
Language:English
Published: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2013
Online Access:http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692013000200562
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spelling oai:scielo:S0104-116920130002005622016-05-16Family network of children with special health needs: implications for NursingNeves,Eliane TatschCabral,Ivone EvangelistaSilveira,Andressa da Child Health Pediatric Nursing Caregivers Social Support OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.info:eu-repo/semantics/openAccessEscola de Enfermagem de Ribeirão Preto / Universidade de São PauloRevista Latino-Americana de Enfermagem v.21 n.2 20132013-04-01info:eu-repo/semantics/articletext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692013000200562en10.1590/S0104-11692013000200013
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country Brasil
countrycode BR
component Revista
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databasecode rev-scielo-br
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region America del Sur
libraryname SciELO
language English
format Digital
author Neves,Eliane Tatsch
Cabral,Ivone Evangelista
Silveira,Andressa da
spellingShingle Neves,Eliane Tatsch
Cabral,Ivone Evangelista
Silveira,Andressa da
Family network of children with special health needs: implications for Nursing
author_facet Neves,Eliane Tatsch
Cabral,Ivone Evangelista
Silveira,Andressa da
author_sort Neves,Eliane Tatsch
title Family network of children with special health needs: implications for Nursing
title_short Family network of children with special health needs: implications for Nursing
title_full Family network of children with special health needs: implications for Nursing
title_fullStr Family network of children with special health needs: implications for Nursing
title_full_unstemmed Family network of children with special health needs: implications for Nursing
title_sort family network of children with special health needs: implications for nursing
description OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.
publisher Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo
publishDate 2013
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692013000200562
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AT cabralivoneevangelista familynetworkofchildrenwithspecialhealthneedsimplicationsfornursing
AT silveiraandressada familynetworkofchildrenwithspecialhealthneedsimplicationsfornursing
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