Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach

ABSTRACT Objective: To understand the experience of a woman with systemic lupus erythematosus and leg ulcers with cutaneous calcinosis. Methods: An experience report based on the social phenomenology of Alfred Schutz, conducted with a young woman undergoing treatment in an outpatient service. Results: The disease manifested itself in adolescence and brought emotional instability associated with body image concern and social isolation. The discontinuation of the studies triggered financial limitations with implications for treatment. The presence of ulcers aggravated by skin calcification makes the process of getting sick tiring and painful. Interpersonal relationships are resources for coping with situations experienced. Final considerations: Patients with lupus may have social, affective, and family life, even in the face of the limitations imposed by the disease. However, the emergence of leg ulcer with calcinosis changes this situation.

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Principais autores: Borges,Eline Lima, Domingos,Selisvane Ribeiro da Fonseca, Campos,Larissa Pereira de Carvalho, Spira,Josimare Aparecida Otoni
Formato: Digital revista
Idioma:English
Publicado em: Associação Brasileira de Enfermagem 2022
Acesso em linha:http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672022000200502
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spelling oai:scielo:S0034-716720220002005022021-10-21Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approachBorges,Eline LimaDomingos,Selisvane Ribeiro da FonsecaCampos,Larissa Pereira de CarvalhoSpira,Josimare Aparecida Otoni Patients Leg Ulcer Lupus Erythematosus Systemic Qualitative Research Life Change Events ABSTRACT Objective: To understand the experience of a woman with systemic lupus erythematosus and leg ulcers with cutaneous calcinosis. Methods: An experience report based on the social phenomenology of Alfred Schutz, conducted with a young woman undergoing treatment in an outpatient service. Results: The disease manifested itself in adolescence and brought emotional instability associated with body image concern and social isolation. The discontinuation of the studies triggered financial limitations with implications for treatment. The presence of ulcers aggravated by skin calcification makes the process of getting sick tiring and painful. Interpersonal relationships are resources for coping with situations experienced. Final considerations: Patients with lupus may have social, affective, and family life, even in the face of the limitations imposed by the disease. However, the emergence of leg ulcer with calcinosis changes this situation.info:eu-repo/semantics/openAccessAssociação Brasileira de EnfermagemRevista Brasileira de Enfermagem v.75 n.2 20222022-01-01info:eu-repo/semantics/articletext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672022000200502en10.1590/0034-7167-2020-0081
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country Brasil
countrycode BR
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libraryname SciELO
language English
format Digital
author Borges,Eline Lima
Domingos,Selisvane Ribeiro da Fonseca
Campos,Larissa Pereira de Carvalho
Spira,Josimare Aparecida Otoni
spellingShingle Borges,Eline Lima
Domingos,Selisvane Ribeiro da Fonseca
Campos,Larissa Pereira de Carvalho
Spira,Josimare Aparecida Otoni
Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
author_facet Borges,Eline Lima
Domingos,Selisvane Ribeiro da Fonseca
Campos,Larissa Pereira de Carvalho
Spira,Josimare Aparecida Otoni
author_sort Borges,Eline Lima
title Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
title_short Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
title_full Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
title_fullStr Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
title_full_unstemmed Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
title_sort patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach
description ABSTRACT Objective: To understand the experience of a woman with systemic lupus erythematosus and leg ulcers with cutaneous calcinosis. Methods: An experience report based on the social phenomenology of Alfred Schutz, conducted with a young woman undergoing treatment in an outpatient service. Results: The disease manifested itself in adolescence and brought emotional instability associated with body image concern and social isolation. The discontinuation of the studies triggered financial limitations with implications for treatment. The presence of ulcers aggravated by skin calcification makes the process of getting sick tiring and painful. Interpersonal relationships are resources for coping with situations experienced. Final considerations: Patients with lupus may have social, affective, and family life, even in the face of the limitations imposed by the disease. However, the emergence of leg ulcer with calcinosis changes this situation.
publisher Associação Brasileira de Enfermagem
publishDate 2022
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672022000200502
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